What should I be taking with Teasel?

[LadyB]

Hello Patti,
I seem to have missed the whole thread here! One thing we all agree on is that Lyme doesn't "DO" stress well, and I can only imagine how your husband losing his job is affecting you . I'm so sorry.

Have you seen no change in the month that you've been on the Teasel/GSE? The time frame for allying with Teasel is 6 weeks to 3 months.

I would not take MMS WITH the GSE - one or the other and it would be a grand idea to Self-Test (you saw that in my resources?) with them both to see which one YOUR body can make the best use of. I have no personal experience with MMS myself. (or salt/c, or rifing - didn't need to).

I took a lot of St John's wort tincture for my tremors (mostly my legs), but it's not everyone's ally. Specifically feeling like your brain is shaking must be unsettling to say the least. Boneset tincture or Blue Vervain also address nerve issues, but we're all so different, it's very hard to do a "Here, Take THIS." on any of this.

Fucoidan appears to be a seaweed product. Is that supposed to be your detoxing ally?

One thing that certainly happens when our dance with Lyme has gone on for a long time is that we lose interest in feeding ourselves well. It's important to be eating simple, NOURISHING foods, and of course, getting plenty of good quality sleep. Very hard to come by when you're stressed.

Here's hoping a breakthrough comes for you soon, both with your health and the finances.
LadyB

[Patti]

what is GSE

[Thane]

GSE= GrapeFruit Seed Extract

Has broad spectrum antimicrobial action and has been shown to bust open lyme cysts.

[Andrea]

I realize that there are no recent posts to the thread, but this may help someone. I think it's really important to get comfortable with self-testing as Lady B recommends. The "usual suspects" may not be ideal for your body. I tested myself for Grapefruit Seed Extract, along with some Buhner protocol items that I had around the house, including 2 brands of Cat's Claw. Surprising to me, the 2 Cat's Claws were the only "positives," one a little stronger than the other. In revisiting Buhner's section on Cat's Claw I could see why it was appropriate - it's good for arthritis pain due to Lyme AND as immune system support it works to build up the numbers of CD57 NK cells that Lyme specifically reduces. Just something to consider.

For the record, I test myself "blind" by writing items on pieces of paper and folding them up so that I have no clue what's on each one. I usually throw in a control or 2 of items that I know are good and/or bad for me. It helps not to have to purchase things without testing for them. Yes, it's that powerful.

I'm very sensitive so have to work extremely slowly. Been on the combo for about 2.5 months and am up to 5 drops teasel and 5 capsules of cat's claw per day. When I upped to the 5 each I had my first good herx - a week of reduced neck and shoulder pain and only 1 small body jolt in bed. Pretty remarkable. Again, self-testing for dosage is important - my therapeutic dosage is 6 of each... though I'll retest down the line and see if a different quantity comes up.

[Patti]

Still taking Teasel, Grapefruit seed extract, cats claw and lots of other things with no change.
Still bedridden and the feeling like my brain is being shaken continues. I had to see 2 Drs last week that social security disability sent me to. One for physical evaluation and one for mental evaluation. Both said I'm disabled, now just have to wait to see what SSD says and how long they take on it. It won't be a lot but it'll help pay for all this stuff I take. Honestly I am no better and thinking it might be time to throw in the towel, I have tried about everything, nothing has helped at all. I don't want to live with this pain anymore if there is no hope.

[LadyB]

Patti, are you Self-testing with the 'lots of other things'? You may just be taking too many things and your body can't handle it all. You seemed to be doing well there for awhile, did you plateau-out? I'm sorry I didn't see this earlier, I don't get notifications of new posts.

I suspect we all felt like 'throwing in the towel' more than once, but then we'd have a GOOD day. Something would change, something would shift. It's hard not to take it to heart when someone labels you 'disabled', but you need that label in order to get SSD payments.

Hang in there, don't be giving up on us.
LadyB