New here

[momoftwohugs]

Hi everyone, I am new here and would like to say how very informative I have found this site so far. Thank you all for sharing your incredible information.

After being Dx (clinically) with Lyme, Babs and Bartonella 3 years ago...my Abx Tx failed and I had to stop all Rx's. As best I can tell, I was infected 3.5 years or so prior to Dx.

My most troublesome problems now are all Bart related, and I have just begun Teasel Root. This is day 4, and I found that 2 drops BID was too much for my system. I have a very sensitive CNS, and it tends to overreact which usually manifests in anxiety/panic attacks/agoraphobia.

I am now taking 1 drop BID, and have found the Teasel to be a positive energy for me. I hope that makes sense! Also used twice a biophoton machine, which has also seemed to provide good benefit.

My ND has said he would like me to start on the KPU protocol by Dr. Klinghardt as well, and I was wondering if anyone here has (or is on) it?

Also, does the Teasel Root work with Bartonella?

Is there anyone on here that has Tx their Bart without use of Abx?

Sorry for all the questions, just really excited to find this site!

[Thane]

Hi momoftwohugs,

Glad you joined our forum!

I am on the KPU protocol. Have you tested for KPU? Or are you and your doctor just planning on giving it a shot and see how you respond? I think its a big missing link in many lymies protocols so let us know what you end up doing with it ok?

I've been on it for about three months and am feeling better, but I am also doing many other supplements so can't credit the KPU for the gains. Luckily I don't seem to have a big metals load like others do. For those who are really metal toxic it can be a rough road.

Teasel has been shown to be helpful against bartonella but I don't know if Teasel alone would be enough. HH capsules by Dr. Zhang have been reported by many as the best bartonella treatment.

Hope something here helps Feel free to post all the questions you have. There are many veterans that frequent this board.

Thane

[Thane]

A couple more thoughts....

If your previous abx treatments were ineffective maybe there's more you could try.

Have you looked into the status of your adrenals and thyroid? When these glands are out of wack its pretty hard to get well again.

What are you doing for detox? Supplements like French Green Clay, Chlorella, Burbur, Coffee Enemas, etc....can be really helpful.

Be well,

Thane

[momoftwohugs]

Hi Thane,

Thank you so much for the response, it is really appreciated. The high dose Abx I was on helped me immensely, and then I hit a wall where all i was seeing was side effects and declining health. After 3 months of that, and arguing with my LLMD...I quit both and was doing fairly well from July 2009, until I got the H1N1 in November. i never really recovered and that was all the Bart needed (I believe) to rear it's ugly head again.

KPU - Interesting that you should mention heavy metal load. I am off the chart with mercury (actually off it) and lead is pretty close behind. I could not tolerate the KPU, so am going to have my amalgams removed soon, and will have to look at proper chelation first. I can't tolerate Chlorella in high dose (suspect because it a form of algea), so no doubt will be looking at other binders, perhaps Activated Charcoal. Am also looking at sauna's for detox, and have a hot tub outside I try to use regularly. Have a hard time tolerating the heat for any length of time though.

My adrenals tested OK, and my thyroid is a bit hypo...the Endo is not concerned about that at all. I live in BC Canada, and getting Tx here is close to impossible. Can't even say "Lyme" to the Dr's. Right now they are trying to pin a "bi-polar" label on me and I am fighting them tooth and nail!

Teasel - I am hoping that by taking the small amount I am now, and slowly ramping up that I can keep the Bart at bay until my system is strong enough to add something else in. The HH from Dr. Zhang...that is a high dose Allicin isn't it? I would like to stay away from Abx as much as possible, yet there are some schools of thought that say Bart can not be beat without it. Not sure about that... My ND says I test strong with Clove Oil, so that may be next.

Any and all input/thoughts/feedback id greatly appreciated!

[Cheryl]

Hi, Alana:

Me again! You sound so much like me!!! My mercury was unbelievably high. I tried the infrared saunas, but found they made me feel sick. Later I learned that those with high metals, especially mercury, do not do so well in the saunas. I had my amalagams out about 4 years ago. Was the best thing I did. I didn't even know about chelations etc. All I knew is the biofeedback (SCIO) was off the charts with mercury. So I just went and had them taken out. I also tried Chlorella and got sick every time. I am guessing that mercury lodged deep in my brain is what is causing my remaining brain issues - mostly memory or lack thereof.

I started with miracle mineral supplement about a year ago. MMS for short. The reason I chose it as my first protocol is that it would kill all pathogens as well as help remove mercury. My first huge jump of improvement was with MMS. Made it 19 days without a seizure with MMS. Added the teasel after 2-3 months and went 3 months without a seizure!!! Seizures were my easiest way to tilll if things were working. This past February I stopped the teasel as I had the herx from hell that was from a detox I was trying. I thought I would just stay off and see how I did. I have done very well. I have since added the ormalite and vitallite clays (you can see my post on that further downthe acitve post list). And am doing better and feeling better than I have since I was in my late 20's early 30's!!!

If I would have done anything different, I would have added the clays earlier to support my body nutritionally. I talked with Michael King, the formulator, and he actually had me start on Mineral Manna.

I also started chlorella again and was able to take it. Dr. K explains that you actually start out with a large dose, not small doses working up. Small doses mobilize a larger amount, but bind to a smaller amount. Large doses mobilize proportionately a smaller amount, but bind to a larger amount. I jumped right in with 15 tabs/3xday. I did get a small stomach ache the first day, but nothing I couldn't handle after all I had been throughthe previous year! I am now letting the clays do the binding for now as I don't want to get too much going at once and I feel sosoooo good on the clays.

Didn't mean to write so much. Hope something in there is helpful!! I personally believe if we listen to all the options and wait, the right answer for us will come clear. It isn't the same road for every person.

Take care,
Cheryl

[momoftwohugs]

Hi Cheryl,

Thanks for the all the info, I am an avid researcher and love it when I find new things that I can read up on (on the days my brain cooperates)

Did you have alot of amalgams removed? Where you sicker AFTER they were removed due to upsetting the mercury? I was not tested with the SCIO, but through a provoked 24hr urine test. It did not measure high enough for my mercury level.

I have looked at the MMS and tested pretty good for it, tested better with the clove oil and Teasel though. It is awesome how it has helped with your seizures! I love to hear success stories.

My most disconcerting problem is that my herxes are not really felt physically (I have a blunted reaction to pain). They are what I call "crazy-making". Intolerance to everything (especially sound) mixed in with anxiety and panic attacks. I actually become agoraphobic on most days because of them. Before I was bit, I would think nothing of hopping on a plane at the last minute and go anywhere. Very odd. Now heading to the grocery store feaks me out most days. It is classic Bartonella, and I feel that perhaps we didn't get it before is due to (in part) my heavy metal load I start addressing that on Monday, thank god. Just not sure what I am in for in the way of any reaction to upsetting the mercury.

I am definitely going to look into the clays, as I noticed that Activated Charcoal pulls everything out with it...and let's face it, who can afford to take supp's and NOT get them into our system!

Cheers,
Alana

[Cheryl]

I am glad you brought up the charcoal....I meant to mention that. The thought fell through one of the swiss cheese holes in my brain.

I felt BETTER within 3 days after the amalgams were out. I think I had 3 big ones removed. Don't remember for sure. Initially I felt MUCH better; but you gotta wonder if that is what brought on the more extreme symptoms with time? Who knows!

Keep us posted on prorgress,

Cheryl

[momoftwohugs]

Will do Cheryl, I have 10 coming out...so will prepare first and do my homework!

[LadyB]

Hi Alana,
I was without my own computer for about 5 days and am just catching up on things. I don't have much to add to all this except to offer the notion that staying on Teasel LONGER at a LOWER dose is better than being in any kind of hurry to increase your dose. On my web site I often say 'my body just didn't WANT more than 2 drops twice a day'. In hindsight, I think I may have found MY Just Below Herx level, which is a good thing. One other thing might be to have some Licorice Root Tincture handy, we've had a couple of other stories here about how it helped immensely with the herx, however it manifests.
Good luck with all this,
LadyB

[momoftwohugs]

Thank you LadyB,

So, the idea is to NOT herx then if I understand you correctly. I will look into the Licorice Root tincture...thank you. My ND had told me to start off with 5 drop 3 times daily of the tincture, ramping up to 15 drops!